WNYGFDSG - Newsletter Archive>
Winter, 2006

January 11, 2006

WNY Celiac News  
 
WNY Gluten Free Diet Support Group, Inc. 
PO Box 1835  
Williamsville, NY 14231  
(716) 636-6021  
CSA/USA Chapter #33-1990 
www.buffaloglutenfree.org 
 
Missed a Meeting? 
Call the Celiac Hotline  
(716) 636-6021  
For up to date  
Information and Special Events  
 
 
 
Celiac Disease Drug Therapy Study  
 
There is a drug therapy study presently being conducted by 
the University of Maryland Center for Celiac Disease and 
Alba Therapeutics. They are researching a new medication 
designed to block the effects of gluten on the intestinal 
tract of Celiacs 
 
NEWS FROM AROUND THE CELIAC WORLD 
Get Involved  
 
Food Labeling Fact Sheet, November 2005 
 
American Celiac Disease Alliance Food Labeling (FALCPA) 
Fact Sheet, November 2005 
 
With the widespread support of the celiac community, the 
Food Allergen Labeling and Consumer Protection Act (FALPCA) 
became law in August 2004. This new law requires 
manufacturers to provide more information about the 
ingredients used to make their food products, by specifying 
the presence of allergens on the product label. These 
important food labeling changes will go into effect on 
January 1, 2006.  
 
The American Celiac Disease Alliance, (formerly the 
American Celiac Task Force) is a coalition of support, 
research and industry organizations that formed in 2003 to 
specifically work for the passage of the food labeling law. 
We understand that you may have many questions about the 
new food labels and what they mean for you as a person with 
celiac disease (or a parent of a child with celiac 
disease). We hope this fact sheet will answer many of your 
questions and prepare you for the exciting changes ahead! 
 
How Will Food Labels Change in 2006? 
 
Many large manufacturers have already implemented the 
changes that are required by the new law, so you’ve 
probably seen the new food labeling system in action.  
Specifically, the law requires that food statements must 
list in plain language, what, if any, of the eight main 
food allergens (milk, egg, peanuts, tree nuts, fish, 
shellfish, soy, and wheat) are contained in a product. In 
addition, allergens are to be listed if they are secondary 
ingredients in the spices, natural or artificial 
flavorings, additives, and colorings in a product. 
 
What About Labeling a Product Gluten-Free? 
 
This important law also asks the Secretary of Health and 
Human Services to establish rules to guide manufacturers 
who choose to voluntarily label their products gluten-free. 
This aspect of the law requires the government to 
establish a standard for what constitutes a gluten-free 
product. It is then up to the individual manufacturers to 
demonstrate that their company meets the standard, if they 
want to have a gluten-free designation on their product 
label. (This standard must be established by 2008.) 
 
What About Cross-Contamination? 
 
The law also requires the FDA to examine how best to 
address the problem of unintentional contamination and 
cross-contact of foods, and determine the best way to 
inform consumers with food allergies about the risk of 
cross-contamination.  
 
Will All Food Products Have Allergens Listed as of January 
1, 2006? 
 
The law requires that products manufactured after January 
1, 2006, have allergens declared on the label. It will take 
time, perhaps up to a year, for more inventory to be 
replaced by items bearing the new label. 
 
Will Restaurants and Cafeterias Have the Same Labeling on 
the Food Products They Purchase? 
 
Yes. However, restaurants and cafeterias will have to 
develop procedures for using this information as they 
prepare food for their customers, in addition to minimizing 
cross-contamination and considering menu listings. 
 
The American Celiac Disease Alliance was formed to advocate 
for individuals with celiac disease. The need for a 
national organization representing the entire celiac 
community was reinforced at a landmark symposium convened 
by the National Institutes of Health. The three day 
symposium culminated in a consensus statement which 
recommended “the formation of a federation” of celiac 
organizations to advance education and advocate for 
individuals with celiac disease. For more information, go 
to www.americanceliac.org.. 
 
How Can I Determine if A Product Is Gluten-Free? 
 
Step 1 
 
Is wheat in the ingredients list or is it listed in an 
allergen statement beneath the ingredients list? If Yes, 
Stop! This product is not gluten-free.  
 
If No, Proceed to Step 2.  
 
Step 2 
 
Read the ingredients list. Is there Barley, Rye or Malt 
listed?*  
 
If Yes, Stop! This product is not gluten-free.  
 
If No, This product is gluten-free and safe to eat.  
 
* People with celaic disease are advised to consult with 
their physician about including oats in their diet. 
 
Shouldn’t I just call the manufacturer, to be sure? 
 
If you have questions about manufacturing practices that 
could result in cross-contamination, a call to the food 
manufacturer may be helpful. However, the food company is 
likely to refer you to its own product label if you are 
calling about an ingredient. Please remember that this new 
labeling system is a legal requirement, and companies have 
to declare allergens like wheat in main ingredients as well 
as colorings, flavorings and spices. Gluten-free consumers 
have been using this system for Kraft, Con-Agra and 
Unilever products for more than a year, with great success. 
 
What Will the New Labels Look Like? 
 
ConAgra adopted the new labeling guidelines before the law 
went into effect. You will need to go to the website to see 
this. 
Below are two labels for the same gluten-free soy sauce. 
 
The first is the old label, the second is one version of 
the new one. 
 
 
 
 
Gluten-free cooking class at Curly’s Restaurant—April 3, 
2006.   
Cost is $40/person and includes the class and dinner.   
Interested parties should contact Curly's at 825-0619 for 
more information. 
 
 
 
 
MEETING AND EVENT SCHEDULE 
 
******With winter upon us, in the event we have to cancel 
our Saturday  
morning meeting, it will be announced on  
930 AM WBEN radio station.****** 
 
 
The WNY Gluten Free Diet Support Group, Inc. normally meets 
on the second Saturday of each month @ 10:00 a.m. at Mt. 
Mercy Academy (MMA) in the cafeteria @ 8 Red Jacket Pkwy, 
just off Abbott Rd Near South Buffalo’s Mercy Hospital.  
Meetings always include special counseling and a grocery 
bag of gluten-free items (courtesy of Wegmans) for the 
newly diagnosed. 
 
Please note: Several of the upcoming meetings do not fall 
on the 2nd Saturday of the month. Check your calendar 
carefully! 
 
January 14, 2006 Diana Monaco, R.D. from the Food & Drug 
Administration will speak regarding the new food labeling 
laws. 
February 4, 2006 Will Thompkins, a pharmacist from Pine 
Pharmacy and Compounding Wellness Center will speak 
regarding gluten-free medications. 
February 12, 2006 Dinner event at The King and I 
restaurant. See page 4 for further details (menu and 
reservation information). 
March 18, 2006 Maureen McCabe, R.N., Director—Osteoporosis 
Resource Center. Her topic will be Prevention / Detection 
/ Treatment. 
April 8, 2006 Sheila Flavin, R.D. Her topic will be 
Incorporating Healthy Eating into the Gluten-Free Diet. 
 
******Note that special time is set aside at support  
meetings for the newly diagnosed to provide assistance and 
answer their questions about celiac disease and the gluten 
free diet.******** 
 
Have you ordered your Wegman's Gluten Free Food List?  
If not, you are making your shopping experience much more 
difficult (and expensive) than it has to be.  
Wegman's offers a list of many Wegman's brand products that 
are gluten free. Order yours today at 1-800-wegmans 
(934-6267) or just go to the information section of our 
website for a link to the list and to the Wegman's Celiac 
recipe of the week! 
 
GLUTEN FREE SPECIAL EVENT - FEBRUARY 1ST - GLUTEN FREE 
DINING EXPERIENCE at The King and I 
Authentic Thai Cuisine 
2188 Kensington Ave. 
(716) 839-2950 
 
Sunday, February 12, 2006 
3 PM 
 
Come and enjoy an assortment of delicious, gluten-free Thai 
cuisine that will be served family style and shared among 
your table mates. 
 
Starters will include: 
Chicken Satay- Chicken grilled in Thai spiced coconut cream 
on wooden skewers, and accompanied by peanut sauce and 
cucumber salad 
 
Gaeng Jerd (Soup) Mixed vegetables with chicken in clear 
broth with cilantro and scallions 
 
Entrees- 
Pud Thai 
Shrimp with rice noodles sautéed with egg, bean sprouts, 
green onion and peanut and Thai spices 
 
Pud Met Ma Muang 
Beef sautéed with cashew nuts, mushrooms, bamboo shoots 
peppers and onions in hot chili sauce 
 
Sesame Chicken 
Crispy chicken stir fried with garlic, ginger and scallions 
with King & I sesame sauce, all topped with roasted sesame 
seeds 
 
Pud Puk 
Mixed vegetables sautéed in a light brown sauce  
 
King & I Fried Rice 
Jasmine rice sautéed with egg, pineapple, cashew nuts, 
vegetables and pork bits 
 
Fruit Course 
 
Beverages include tea and soft drinks. (Alcoholic 
beverages available at cash bar) 
 
All-inclusive cost of $20.00 MUST be prepaid by check and 
mailed to Marilyn Hauck at 30 Ainsley Court,  
Williamsville, NY 14221 before February 1, 2006. YOUR CHECK 
IS YOUR RESERVATION. 
Limited to 35 people  
 
WNY GLUTEN FREE DIET SUPPORT GROUP RECIPE CORNER 
If you have any original gluten-free recipes you would like 
to share, please submit them to the newsletter by email to 
outdrlex@localnet.com or mail to: WNY Gluten Free Diet 
Support Group, P.O. Box 1835, Williamsville, NY 14221 
 
 
Two Bit Wonders 
 
Ingredients: 
1/2 cup (5 oz., 1 small can) sweetened condensed milk 
2 cups (6 to 8 oz.) shredded unsweetened coconut (may need 
more coconut to make less watery) 
 
Preheat oven to 350°. Cover cookie sheets with parchment 
paper. In medium bowl, combine condensed milk and coconut. 
Drop mixture by tablespoons onto the parchment paper.  
Bake for 13 to 14 minutes, or until cookies are set and 
slightly brown. 
 
Remove cookies form oven and take off cookie sheets when 
cool. Should make 2 to 3 cookie sheets. 
 
- - Diane Bantle, WNY Gluten-Free Diet Support Group 
 
 
Rapid-Rise French Bread 
 
Crusty outside, soft and tender within, this quick and easy 
French bread formula uses rapid-rise yeast and requires 
only one rising. You can make it from start to finish in 
about one hour. Serve hot from the oven and watch everyone 
rave. 
 
Ingredients: 
2 cups white rice flour 2 tbs. rapid-rise yeast 
1 cup tapioca flour 2 tbs. butter or margarine, melted 
3 tsp. xanthan gum 3 egg whites, beaten slightly 
1-1/2 tsp. salt 1 tsp. vinegar  
2 tsp. Egg Replacer (optional) Melted butter, for brushing 
(optional) 
2 tbs. sugar 
1-1/2 cups lukewarm water 
 
In the bowl of a heavy-duty mixer, place flours, xanthan 
gum, salt and Egg Replacer (if used). Blend with mixer on 
low.  
 
Dissolve the sugar in the water and add the yeast. Wait 
until the mixture foams slightly, then blend into the dry 
ingredients. Add the butter, egg whites and vinegar. Beat 
on high speed for 3 minutes. 
 
To form loaves, spoon dough onto greased and 
cornmeal-dusted cookie sheets in two long French-loaf 
shapes or spoon into special French-bread pans. Slash 
diagonally every few inches. If desired, brush with melted 
butter. 
 
Cover the dough and let rise in a warm place until doubled 
in bulk, 20 to 25 minutes. Preheat oven to 400°. Bake for 
40 to 45 minutes. Remove from pan to cool. Makes 2 
loaves. 
 
Please note: This bread freezes well. 
 
—Carrie Beaver, WNY Gluten-Free Diet Support Group 
 
Restaurants recognizing “gluten-free” / many offering 
special gluten-free menus 
 
Please try these fine restaurants if you haven’t already.  
Or if you know of any additional celiac-friendly 
restaurants, please inform Marilyn Hauck @ 636-6028 and 
we’ll consider adding them to the list. NOTE- Inclusion 
of establishments on this list does NOT eliminate the need 
for you to clearly convey your special dietary need to the 
waiter! 
 
 
Borealis Restaurant  
687 Main Street East Aurora, NY 14052  
652-1640 
 
Carrabba’s Italian Grill 
1645 Niagara Falls Blvd. (really N. Bailey past Best Buy) 
Amherst, NY 
833-5033 
 
Curly’s Bar & Grill  
647 Ridge Road  
Lackawanna, NY 14218  
824-9716  
 
DACC’s 
3175 Millersport Hwy. 
Getzville, NY 14068 
568-2130 
 
Golden Duck  
1840 Maple Road, near Ayer  
Williamsville, NY 14221  
639-8888  
 
Hutch’s 
1375 Delaware Avenue 
Buffalo, NY  
885-0074 
 
KAFFE Korner  
Aurora & Como Park Blvd.  
Lancaster, NY 14086  
683-6890  
 
Le Metro 
5110 Main Street (Walker Center  
Williamsville, NY 14221 
634-0726 
 
Outback Steakhouse  
1551 Niagara Falls Blvd.  
Amherst, NY 14228  
833-3067  
and at: 
S 3670 McKinley Pkwy. 
Hamburg, NY 14075 
823-2020 
 
Pizza Plant  
(Wheat-free Wednesdays after 4pm)  
8020 Transit Road  
Williamsville, NY 14221  
632-0800  
 
Red Mill Inn Restaurant 
8326 Main Street 
Williamsville, NY 14221 
633-7878 
 
The Roycroft Inn  
40 South Grove St.  
East Aurora, NY 14052  
652-5552  
 
Shogun 
7590 Transit Road 
Williamsville, NY 14221 
631-8899 
 
Tantalus Restaurant  
634 Main Street  
East Aurora, NY 14052  
652-0341  
 
Teta’s Middle Eastern Cuisine (ask for Rogella)  
9370 Transit Road 
East Amherst, NY 14051 
636-5944 
 
 
 
2006 ANNUAL DUES NOTICE 
 
Please remit your 2006 annual dues payment of $15.00 and 
any donation you may wish to make by writing a check 
payable to WNYGFDSG and mailing to: 
 
WNY Gluten Free Diet Support Group, Inc.  
PO Box 1835 
Williamsville, NY 14231-1835. 
 
 
(Please disregard this notice if you are a NEW MEMBER who 
paid your dues during the September—December 2005 time 
period. That payment covers 2006.

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